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  • Community Forums - GBS|CIDP Foundation International Forums
    Community Forums Join the Conversation Connect with others who understand Join our community forum to share experiences, ask questions, and find support from people living with or caring for someone with GBS, CIDP, or MMN
  • Effects of GBS over 2 years later
    Hello, I had GBS and was hospitalized for two weeks in August of 2015 Recovery took a long time Now, 2 years and 4 months later, I have concerns that I can’t find a concrete answer on I still experience muscle soreness and pain, in my knees and down to my feet, and in my forearms and hands At times, my hands can be very shaky, especially in my fingers Also when doing physical things
  • Recomendations for Dental Work - GBS\|CIDP
    Hello, I am post GBS two and a half years Still have fatigue, and pain mostly in feet and legs I am scheuled for some dental work to replace an old cavity Are there dangers I should be aware of before I have this procedure done? My regular Dentist is out with cancer and I will be seeing a new dentist at his practice for this What should I make them aware of or what should I research before
  • Body Temperature? - GBS|CIDP Foundation International Forums
    Natesmom, GBS can effect the autonomic nervous system and the nerves that control body temperature are part of this system It’s not uncommon to feel hot or cold, regardless of actual room temperature This problem, like most residuals usually lessens or goes away with time, as the nerves heal Patience – it’s so hard to learn, especially for children Best wishes for Nate’s quick
  • Alcohol and Nerve Damage - GBS\|CIDP
    norb, i really don’t know for years after gbs i was afraid to take a drink for fear of who-knows-what [prolly making my difficult condition worse] anyway, when i finally went back to the occasional, i never noticed any difference i stopped my heavier drinking 10 years before getting gbs take care be well gene gbs 8-99 in numbers there is strength
  • CIDP and facial mouth numbness - GBS|CIDP Foundation International Forums
    I was afflicted with a combination of GBS CIDP MFS in 2008 and am now wheelchair-bound as a result While in the ICU at Cedars-LA for Pneumonia in 2009, I was advised by my neurologist to try Plasma Exchange (PE) for my CIDP MFS condition I did this when I was released from the ICU some days later
  • electric muscle stimulation? - GBS|CIDP Foundation International Forums
    I have just completed a research project which used “W-Wave” electronic stimulation to evaluate its effect on calf muscle strength This particular device is used by many high profile athletes to speed recovery from injury The theory is that the device improves blood flow I used the device twice a week after working out at the YMCA One electrode under the arch and one electrode behind
  • Fasciculations - GBS|CIDP Foundation International Forums
    I was diagnosed with AIDP (GBS) in March of 2017 While going that experience I recalled having muscle twitches, tremors and fasciculations in my legs but the went away at least I thought so
  • CIP CIDP - GBS|CIDP Foundation International Forums
    Has anyone done hyperberic treatments, Heard from people i know with MS it works by tacanady last updated 1 week ago
  • Need GBS Dr around Boynton Beach Florida
    My Mom is going through a bout of GBS for the 2nd time in 11 years We had an amazing Doc in NY last time, Dr Michael Swerdlow, but unfortunately she’s in SE Fla now She was in Del Ray Hospital and is now in Boynton Health Care Center Does anyone know a good neuro that treats this disease? HELP!!!





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